Lili’s story | From irritability and infantile spasms to a Lennox-Gastaut syndrome (LGS) diagnosis
Lili was 6 months old when she was diagnosed with seizures. She was first diagnosed with infantile spasms, and then it transitioned into LGS at around 4 years of age. In this video, Lili’s mom, Natalie, shares their diagnosis journey.
Brynleigh’s story | From an angel feather beauty mark to tuberous sclerosis complex
Brynleigh’s mom, Lauren, had to trust her motherly instincts when fighting for a diagnosis for her daughter. She shares their story in this video.
Have you started the conversation with your doctor?
While everyone’s diagnosis story is different, many started by trusting their instincts and having a conversation with their doctor. Knowing what questions to ask and how to explain the signs you are seeing is the first step to getting a more specific diagnosis.